BECOME A MEMBER TODAY!!! click here Our next meeting is: June 20, 2012 First Floor, Sydney Mechanics Institute  280 Pitt Street, SYDNEY  (click for map) 11am For the Meeting Schedule click here including other locations around NSW

click for mobile version Search includes: contents of Newsletters, names in image captions. only search www.stilltalking.org News: (click links to read)               modified May 18, 2012 Paula Macleod (Head & Neck Cancer Care Nurse Coordinator) Royal North Shore Hospital will address the June 20 meeting on topics of interest to the audience. May 2012 Newsletter Research Funding: St George Swallow Centre notice to Laryngectomees residing in Manly, Pittwater & Warringah Northern Beaches Speech Pathology Department (Manly and Mona Vale Hospitals) has established a service for patients with total laryngectomy. The therapist can manage and change voice prostheses, provide advice regarding general laryngectomee care and assist with applications for larygectomy specific equipment. If you reside in Manly, Pittwater or Warringah Local Government Areas and have a larygectomy (voice prosthesis or not) you can contact Klint Goers at the Speech Pathology Department on 9976 9383 or kgoers@nsccahs.health.nsw.gov.au Communication after laryngectomy Admin's note: I found this video to be "spot-on", it resonates with my experience. Information re Research sponsored by LANSW including presentation slides and peer reviewed papers can be accessed via this link. April 2012 Newsletter LARYNGECTOMY It can be hard to swallow: Dr Julia MacLean March 2012 Newsletter Emergcency Cleaning of Electolarynges;  Saving Saliva Function Collage & Snapshots from 2011 Xmas Party February 2012 Newsletter President's letter 2012 December 2011 Newsletter  EnableNSW:Voice Related Devices;  Letters from Larys New links: Len A.Hynds The Speechless Poet   The Talkback Association for Aphasia Inc   The Cancer Laryngectomee Trust click here to Show previous news items November 2011 Newsletter  Stomach Gas and Acid Reflux  by Carla DeLassus Gress; Letters: Plight of Rural Larys; HME cassette supply by Enable. October 2011 Newsletter  IAL:The International Association of Laryngectomees Page 4 Letter with colour photo  Jim Hunt pic;  stringrays in pool September 2011 Newsletter  Cancer Council Services; "Press Don't Panic"; What On Earth Happened To My Thyroid Gland? August 2011 Newsletter  Letters to the Editor: International Travel by Larys; Communicating with Enable NSW July 2011 Newsletter  Can radiation cause dizzy or fainting spells (vasovagal syncope)? NEW BRITISH LARYNGECTOMEE WEBSITE http://plymouthlc.webs.com/ click here for schedule of some upcoming workshops run by the Cancer Council etc A study titled "An Examination of Self-Efficacy and its Impact on Treatment Response in Adults who have undergone a Total Laryngectomy (removal of the voice box)." is currently being undertaken by researchers from La Trobe University Melbourne. Click title for more information or if you would like to participate. June 2011 Newsletter  Shoulder Dysfunction references Dr Glenn E Peters "Headlines" USA Unspoken Truths "Until cancer attacked his vocal cords,..." by Christopher Hitchens in Vanity Fair June 2011 Christopher Hitchens Talks Cancer and God on YouTube Click here for even older outdated items. YOU CAN SAY THAT AGAIN a reference booklet, guide and helpline for those about to have, or have had, a laryngectomy, their families,friends, carers. "Smooth As Silk" a CookBook for those with swallowing and/or chewing difficulties is available ONLINE in two forms.

Welcome To StillTalking.org

After Laryngectomy surgery a person is confronted with a whole new way of life, no matter how much everything may seem to remain the same. The Laryngectomee may become antisocial from experiencing difficulty in talking in group situations, in a noisy environment or where he feels they are breaking the flow of conversations through their difficulty with speaking. A Laryngectomee support group is the ideal place to practice socialising where other Laryngectomees and their family and friends will be able to relate to any problems and provide a comfortable environment which encourages communication.

In addition, a Laryngectomee support group is the best place for a new Laryngectomee to receive information, exchange ideas and discuss problems with people who have been through the whole Laryngectomy experience. Hospital professionals give general advice and information immediately before and after a Laryngectomy to a person in a fairly traumatic situation and a lot can go in one ear and out the other. Also, ongoing problems may not become apparent until months after the operation and any associated radiotherapy or chemotherapy.

The Laryngectomee support group, possibly more importantly, is the place where spouses can meet other spouses of Laryngectomees to share frustrations and personal experiences that might seem like difficulties that only they, in all the world, are confronted with.

Our Association attempts to reach as many patients who undergo a Laryngectomy in New South Wales as possible, in order to let them know that support groups exist, their aims, purpose, when and where they meet along with contact numbers. Then, obviously, it is up to the new laryngectomee to make the effort to attend their most accessible support group to find out what benefits it can offer them and hopefully they can give their input in helping others who become Laryngectomees after them.

DON'T FORGET ONE OF YOUR BEST FRIENDS WILL BE YOUR SPEECH PATHOLOGIST!

Our hardcopy booklet "YOU CAN SAY THAT AGAIN" printed in association with the Cancer Council of NSW
is now available ONLINE in two forms:
as an updated WEBPAGE and
as a PDF file as of 25/02/2010 for VIEW or DOWNLOAD
It was produced as a reference, guide and helpline for those about to have, or have had, a laryngectomy.
The purpose is to assist them, their families, friends and carers towards a positive rehabilitation and future and to give confidence that they will speak again.

FOR SUGGESTIONS, COMMENTS, CRITICISMS re this WEBSITE or booklet:   please email admin@stilltalking.org

Our "Smooth As Silk CookBook"
is now available ONLINE in two forms:
for viewing as an updated WEBPAGE and
as a EBook MOBI file as of 18/02/2012 for DOWNLOAD
It was compiled and produced by the
Laryngectomee Association of N.S.W..
FOR THOSE WITH SWALLOWING
AND/OR
CHEWING DIFFICULTIES

FOR SUGGESTIONS, COMMENTS, CRITICISMS re this WEBSITE or booklet:   please email admin@stilltalking.org